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Understanding Celiac Disease     

CHILDREN’S MULTIDISCIPLINARY Care: GASTROENTEROLOGY-Hepatology-Nutrition

CELIAC DISEASE OVERVIEW

FACTS AND FIGURES      PDF> Understanding Celiac Disease

                                                    Celiac Disease Conference(04/12)                                                                     

Disease

  • It is an inherited autoimmune disorder that affects the digestive process of the small intestine
  • Triggered by gluten, a protein found in wheat, rye and barley
  • Immune system responds by attacking the small intestine affecting absorption of nutrients
  • Undiagnosed and untreated celiac disease can lead to the development of other autoimmune disorders, as well as osteoporosis, infertility, anemia, neurological conditions and in rare cases, cancer

SYMPTOMS

  • Bloating or Gas
  • Diarrhea
  • Constipation
  • Fatigue
  • Failure to Thrive
  • Anemia
  • Weight Loss
  • Abdominal Pain
  • Itchy Skin Rash
  • Tingling/Numbness
  • Pale Mouth Sores
  • Joint Pain
  • Delayed Growth
  • Poor Weight Gain
  • Thin Bones
  • Infertility
  • Headaches
  • Depression
  • Irritability
  • Discolored Teeth

PREVALENCE

  • In average healthy people: 1 in 133
  • In people with related symptoms: 1 in 56
  • In parents, children, or siblings who have celiac disease: 1 in 22
  • Celiac disease affects at least 3 million Americans, 1% of the population

GLUTEN-FREE DIET

FACTS

  • A gluten-free diet is the only treatment for celiac disease and is challenging for good adherance
  • In 2004, the Food Allergen Labeling and Consumer Protection Act became law and went into effect in 2006
  • There are still no specific guidelines by the FDA in terms of defining cutoffs: 5 to 20 parts per million

PRECAUTIONS FOR SCHOOL CHILDREN

  • Label reading
  • Proper hand washing
  • Avoidance of cross contamination in cafeterias, food preparation
  • Effective table and desk washing with appropriate chemicals and materials

LIVING GLUTEN FREE


Foods to Eliminate:
  • Wheat
  • Barley
  • Rye
  • Duram*
  • Einkorn*
  • Farro*
  • Kamut*
  • Spelt*
  • Triticale*

*Types of wheat

Hidden Sources of Gluten:
  • Modified food starch
  • Hydrolyzed vegetable protein
  • Hydrolyzed plant protein
  • Malt vinegar
  • Soy sauce or soy sauce solids
  • Brown rice syrup
  • Dextrin
  • Textured vegetable protein (TVP)
  • Vegetable gum
Non-food Items to Avoid:
  • Lipstick
  • Certain vitamins
  • Certain medications
  • Stamps and envelopes you have to lick
  • Play-Doh
Safe Foods:
• Beans
• Quinoa
• Buckwheat
• Rice
• Corn
• Sorghum
• Millet
• Soy
• Nut flours
• Tapioca
• Potatoes
• Teff
• Cornmeal
• Polenta
• Amaranth
• Millet
• Sweet potatoes
• Rice
• Tofu
• Gluten-free flours made of rice, soy, or potato
• Any food product that says “gluten-free” on the box

CARE TEAM

Gastroenterology Team Leaders:
Judy Fuentebella, MD
Elizabeth Gleghorn, MD

Consults/Referrals
• 510-428-3058


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