Keyvon had a rare form of a serious skull disorder called craniosynostosis. Keyvon’s skull sutures did not close in utero but at some later time.
By the time he came to Children’s, all of Keyvon’s skull sutures had fused, but his head size was small for his face. His brain was developing and expanding, but his skull could not.
Plastic craniofacial surgeon Bryant Toth, MD and neurosurgeon Peter Sun, MD operated on Keyvon. After surgery, Keyvon’s headaches disappeared and his blood pressure dropped.
“The surgery has changed his life,” says Jeanne, Keyvon's mom, "He used to say he hated his world and that he wanted to hurt himself. Now he tells everybody how girls think he’s cute."
• Alveolar cleft
• Cleft lip
• Cleft palate
• Craniofacial problems as a result of trauma
• Craniofacial syndromes
• Significant malocclusion