Tuberous Sclerosis Complex Jack & Julia Center

The Jack & Julia Tuberous Sclerosis Center at UCSF Benioff Children's Hospital Oakland offers case management and comprehensive care to children with Tuberous Sclerosis Complex (TSC). By providing access to neurologists, cardiologists, dermatologists, nephrologists, neurosurgeons, dentists, ophthalmologists, pulmonologists, and TSC specialists in one convenient location, we're able to provide a level of care that not only improves outcomes for patients but also betters quality of life for the whole family.

Find Us

Why Families Choose Us

Comprehensive and Specialized TSC Care

  • The Jack & Julia Center was founded with the understanding that the medical concerns and development of individuals with TSC are unique and therefore require specialized care.
  • Our team of specialists is experienced in meeting the medical, developmental, psychological, and social needs of patients with TSC in a comprehensive and coordinated manner.

Streamlined Access to Professionals across the Medical Spectrum

  • Because epilepsy, developmental delay, and behavioral concerns account for the most common issues in TSC patients, a developmental pediatrician and a neurologist with extensive TSC experience lead the initial evaluation and ongoing coordination of care.
  • Depending on the specific needs of each patient, these specialists may refer the child to a variety of other professionals at Children's Hospital Oakland, including cardiologists, dermatologists, nephrologists, neurosurgeons, dentists, ophthalmologists, pulmonologists, and/or gastroenterologists designated as TSC specialists.

Recognized by the Tuberous Sclerosis Alliance Since 2004

  • With just over 40 clinics in the U.S. serving tuberous sclerosis patients, Children's Hospital Oakland is recognized as the primary TS clinic in the Bay Area.
  • The TSC Center at Children's Hospital Oakland is open five days a week to provide more streamlined access to care. All individuals with TSC, including adults, can receive services at our clinic.

Coordinated Care for TSC Patients and Families

  • Our staff is available to help with patient management and coordination of care. Because so many departments are included in the treatment and care of TSC, we're able to facilitate referrals and authorizations with insurance companies as well as coordinating appointments with other specialists.
  • In addition to providing services on-site, we also assist our patients' primary care doctors in addressing those aspects of TSC that affect health and development at home.