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The Family Advisory Council (FAC) is a group of parents and family members who actively support Children’s family-centered approach to care by sharing our perspectives with hospital staff and serving as an advisory resource to hospital leadership. We offer a unique perspective on the patient and family experience that the hospital administrators and staff want to hear. Families are the best advocates for their children, and as a member of the Advisory Council, you can work with other compassionate advocates to help guide the way care is delivered. Parents and family members with a child who has had experience with Children's Hospital Oakland are invited to apply for membership on the council.

Family Advisory Council Goals:

  • Give input from families to hospital staff to help improve services, care, and communication between families and staff.
  • Provide ideas from families about policies and procedures in the hospital.
  • Bring family concerns to the attention of hospital leaders.

Family Advisory Council Accomplishments:

The Family Advisory Council (FAC) has worked closely on projects with several hospital departments. The Council gives input from the family perspective. The FAC has worked with Nursing, Hospital Operations, Security and Badging, Infection Control, Patient Rights, Facilities, Improvement Workshops, and the Complaint and Grievance Program.

What Can I Do?

  • Provide ideas on how to improve the hospital stay for patients and their caregivers
  • Become a member of the Family Advisory Council
  • Suggest someone else become a member

Meetings 

When: Fourth Wednesday of each month 
Where: Main Hospital

Application

Contact

Your ideas, input, and concerns are welcome to improve the care and safety of our patients.

Phone: 510-428-3885, ext. 5483
Fax: 510-601-3924
Email: cjohnston@mail.cho.org or estephens@mail.cho.org

Family Advisory Council Members:

Courtney – I have three children, a son with special needs and two typically developing daughters. Each of them has received care at UCSF Benioff Children’s Hospital Oakland, and my son receives care from several departments/specialists. I am a super-fan of the staff at Children’s Hospital Oakland and feel grateful to be able to give back to the institution that’s provided top-notch care to my children. Kudos to Children’s Oakland for giving a voice to the patient families.

Daniel – After her AML leukemia diagnosis, our daughter called this home for 9 months, most of the time in a double door isolation ward, a terrifying week in ICU, and earned a dozen stuffed “surgery bears” by having to undergo as much OR procedures. Then, nerve-wracking monthly, quarterly, yearly tests to be sure she remains cancer-free (YES!). Now, we want such excellent care for others, and I am pleased for the opportunity to help.

Elizabeth—We have two young children who have used over a dozen departments at Children’s for various conditions since 2001—Gastroenterology, Rheumatology and Physical Therapy to name a few. When asked to join the planning team of the Family Advisory Council I was thrilled to have the opportunity to give back.

Kausha—Our son Christian, who has a diagnosis of cerebral palsy, seizure disorder and chronic lung disease, is currently treated in the departments of Neurology, Pulmonary, Gastroenterology, Rehabilitation, Orthopedics and Ear, Nose and Throat. We are always encouraged and strengthened by the passion and care provided by his physicians.

Leanne—Hearing that your child has cancer is not something parents are supposed to hear. The staff and volunteers at Children’s embraced us with enduring support to help us through our journey. It takes an entire village to raise a child to their best potential. I feel compelled to help others and helping children is high on my priority list.

Amanda – I have two children, a son with special needs and a daughter who is typically developing, who are seen regularly at Children’s. I feel honored to be able to give back and provide a voice for families at Children’s. Children’s has truly changed our lives.

Lacey – My only child, Lucas, was diagnosed in-utero with multiple physical birth defects when I was just 20 weeks pregnant. The next two and a half years were a whirlwind of procedures, appointments, surgeries, therapies and mostly raw emotions. Today I have a beautiful, amazing boy with CHARGE syndrome who I wouldn't change for the world. We frequent many of Children's sub-specialists including Audiology, Cardiology, Endocrinology, GI, Ophthalmology, Orthopedics and more.

Eileen - Our daughter Kate was 13 years old when she was diagnosed with Type 1 Diabetes (T1D), an autoimmune disorder that affects insulin production in the body. This complex medical disease requires 24/7 attention, as well as significant lifelong self-care. The medical team at UCSF Benioff Children’s of Oakland Diabetes Team supported our daughter by acknowledging the unique challenges that this condition can present, and by facilitating our family’s understanding of how this disease can affect not only her physical well-being but her emotional and spiritual personage as well. With a team of UCSF Benioff Children’s clinicians and staff that include: Endocrinologist, nursing support, Certified Diabetes Educator’s, Registered Dietitian's, and a Parent/Family/Caregiver TID Support Group. I am grateful for the opportunity to serve on Children’s of Oakland Family Advisory Council, and I am committed to working on projects that relate to developing, creating and improving communication strategies within our hospital community.

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